International Pressure Injury Consumer Survey

About this Survey

The book Prevention and Treatment of Pressure Ulcers/Injuries: Clinical Practice Guideline is being updated. This book teaches nurses, doctors and other carers about pressure injuries. The book is used across the world in hospitals and clinics.

The EPUAP/NPUAP/PPPIA research team is doing a survey for updating this book. The researchers are from universities around the world, including the Australian National University (ANU). The contact researchers are:

  • Associate Professor Emily Haesler (ANU and Curtin University)
  • PD Dr. rer. cur. Jan Kottner (Charité Universitätsmedizin Berlin)
  • Professor Janet Cuddigan (University of Nebraska).
All the researchers are experts in pressure injuries.

Outline of the Project

Pressure injuries are a type of wound. Pressure injuries are also called pressure ulcers, pressure sores, bed sores, bed ulcers or decubitus ulcers. A pressure injury occurs for many reasons but often happen when someone is lying in one position for too long.

We are asking patients and carers what they would like to know about pressure injuries. The answers will be used to update the book and make information sheets for patients around the world. The book will be available on this website in late 2019.

We might report the survey results in a research journal. This will be available on this website in late 2019.

What does being involved in the research mean?

We care about the “voice of the patient”. If you or a loved one have had a pressure injury, or have worked to prevent pressure injuries, we are interested in your experience. To be involved you can do a short survey on this website. The survey asks you to share your knowledge, preferences and values. The survey takes about 5 or 10 minutes.

Agreeing to do the survey

You do not have to do this survey (it is voluntary). If you do the survey, your answers are private (confidential). The survey doesn’t ask your name. You can complete the survey without us knowing who you are (anonymous).

If you do not want to continue the survey at any point, close the window and your answers are deleted. The research team will not know you ever visited this website.

If you do the survey, you do not have to answer all the questions. If you click ‘finish’ it will show us that you want to participate (consent to take part). After you submit the survey you cannot change or delete your answers.

Anyone in the world can complete this survey. It will be available on this website for at least 3 months.

Risks and Benefits

The survey has no personal benefits to you. By answering the survey you will help us to give patients and carers around the world information they want to know about pressure injuries. This might help other people avoid having a pressure injury.

The survey has no risks. You might feel very small discomfort about answering broad questions about your health. If you feel uncomfortable, you can stop taking the survey by closing the window. The researchers are also available to talk to.


If you do the survey, your answers are private. The survey doesn’t ask your name (anonymous). When we write the results, answers from everyone who did the survey are combined, so no one can tell who you are (confidential).

Privacy Notice

The ANU must comply with the Privacy Act 1988 when it approves a survey. You can read the ANU Privacy Policy. The policy contains information about how to complain about a breach of an Australian Privacy Principle by ANU, and how ANU will handle the complaint.

Survey Storage

Your answers will be stored on a secure computer in Canberra, Australia for at least 5 years. At the end of the storage period the data will be archived for future research projects. The survey might be repeated next time we update the book so we might compare them to this survey.

Contact Details

If you need more information or you are concerned about this survey, please contact the researchers.

Ethics Committee clearance

The ethical aspects of this research have been approved by the ANU Human Research Ethics Committee (Protocol 2018/66). If you have problems or complaints about this survey, please contact:

Ethics Manager

The ANU Human Research Ethics Committee
The Australian National University
Telephone in Canberra, Australia: +61 2 6125 3427
Email: Human.Ethics.Officer@anu.edu.au